We had a cool night on saturday, I was hoping to take my son with us but he was other wise engaged. Not to worry tho there is always next time. I sat and enjoyed the music and watching Paul dance like a nutta for 3-4 hours non-stop. That man has stamina lol.we got home and went to bed for well no need to go into all the details but lets just say we didnt end up on a good note, My hip popped out of socket! badly, Its not good at all when 2 consenting adults cannot get "at it" without popping a socket.
I have tried to get around but this time its BAD, usually the hip that pops out the most is my right one, this time its my left hip.I did go and get X-rays a few weeks ago but like I said to my GP "I doubt it will show anything" but she sent me anyway and guess what.. nothing abnormal detected. ERM excuse me I told you that.. I need a scan not an xray.. but hey what do I know, its not like any of the GP's I have seen actually have read up on EDS or want to listen to me when I explain these things.My back is also really bad, it feels like I keep catching bone against bone and its so painful it makes me feel sick, I do have scoliosis so should go and get it looked at, but then I think well why Lara, the DR will tell me " Yes we know you have scoliosis there is nothing we can do" GRRRRRR SOMEBODY LISTEN TO ME!!!SOMEBODY HELP ME!!! I dont really have anyone to talk to about it which can be very hard. Paul is great but too protective and does not understand that YES I know I have to rest, but I dont want to do nothing for the rest of my life, I dont see much of my family but am around Pauls family alot.Pauls sister Elaine is about the only person who has taken the time to read up on EDS or who is interested in listening. Most of the others tell Paul to stop going on about it, or roll there eyes thinking "here we go again"(Thats where I get flashbacks of feeling like everyone is thinking "HYPOCONDRIACH") They dont understand that Paul has alot to deal with on a daily basis and this is not going away. at this point I am very low and feeling like I have knowhere to turn,
I hate being me, I hate my body, I hate the way I think and I HATE EDS.